11.2K posts

ez

@ezchili

elinz.bsky.social ME/CFS, science, history of ideas, board games, words, photography, film, chili peppers, forever curious, disabled. #MEcfs #pwME

Sweden

bsky.app/profile/elinz.…

Joined January 2010

923 Following

6,660 Followers

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ez
@ezchili
Jan 27, 2022
Historical quotes on the importance of rest for people with ME: “Premature activity should be avoided because of the danger that relapse might be provoked.” /Compston, Epidemic at Royal Free Hospital, 1956. #StopRestPace #pwME #MEcfs
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ez
@ezchili
Dec 5, 2024
I'm less here than before, but not ready to delete my account because I want to keep contact with the community. 🧡 But I will unfollow paid accounts. Maybe that's hypocritical since me being here is also supporting X, but I think paying is one step too far in supporting X.
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ez
@ezchili
Mar 16, 2024
Long Covid is a useful & important name & diagnostic code! As important are subgroups that LC patients might fulfill criteria for The fact that it is possible to get severe post-infectious syndromes from other viruses like the flu, does NOT mean the term #LongCovid is redundant
ez
@ezchili
Mar 10, 2024
Hej @anna_bratt ! Tips. Det här kanske kan vara av intresse för kommande artiklar på ämnet post-infektiösa sjukdomstillstånd.
ez
@ezchili
Mar 10, 2024
Replying to @ezchili
"There has been increased interest in ME/CFS recently because of its significant overlap with the post-COVID syndrome ... with several studies estimating that half of patients with post-COVID syndrome fulfill ME/CFS criteria." Grach, et al (2023) #MECFS mayoclinicproceedings.org/article/S0025-…
ez
@ezchili
Mar 10, 2024
Är extremt besviken på att svenska forskare och media ignorerar att ca 50% av de med postcovid har ME/CFS. Blir lika ledsen för varje artikel. Artiklar som i övrigt är bra och med experter som borde veta bättre. Stigmat är starkt. Jag hoppas på kunskapsspridning. #MECFS #pwME
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